自由行走的花 发表于 2024-3-1 09:23:16

江苏发现一例!极其罕见…

<section data-role="outer" label="edit by 135editor" data-mpa-powered-by="yiban"><section style="margin-bottom: 24px;outline: 0px;letter-spacing: 0.544px;background-color: rgb(255, 255, 255);font-family: system-ui, -apple-system, BlinkMacSystemFont, Arial, sans-serif;"><section style="outline: 0px;text-align: center;"><section data-role="outer" label="edit by 135editor"><section style="margin-top: 20px;margin-bottom: 40px;outline: 0px;text-align: left;justify-content: flex-start;display: flex;flex-flow: row;"><section style="padding-right: 20px;padding-left: 20px;outline: 0px;display: inline-block;width: 100%;vertical-align: top;background-color: rgb(240, 248, 253);border-top: 3px solid rgb(193, 223, 244);border-top-left-radius: 0px;align-self: flex-start;flex: 0 0 auto;"><section style="margin-top: -13px;margin-bottom: 15px;outline: 0px;text-align: center;"><section style="outline: 0px;display: inline-block;width: 22px;height: 22px;vertical-align: top;overflow: hidden;border-width: 0px;border-radius: 58px;border-style: none;border-color: rgb(62, 62, 62);background-color: rgb(238, 145, 145);line-height: 0;"><section style="margin-top: 10px;outline: 0px;"><section style="outline: 0px;display: inline-block;width: 14px;height: 3px;vertical-align: top;overflow: hidden;background-color: rgb(255, 255, 255);"><svg viewbox="0 0 1 1" style="float: left;line-height: 0;width: 0px;vertical-align: top;"></svg></section></section><section style="outline: 0px;transform: rotateZ(90deg);"><section style="margin-top: -3px;outline: 0px;"><section style="outline: 0px;display: inline-block;width: 14px;height: 3px;vertical-align: top;overflow: hidden;background-color: rgb(255, 255, 255);"><svg viewbox="0 0 1 1" style="float: left;line-height: 0;width: 0px;vertical-align: top;"></svg></section></section></section></section></section><section style="margin-top: 15px;margin-bottom: 20px;outline: 0px;"><section style="outline: 0px;color: rgb(58, 58, 58);text-align: justify;"><p style="margin-bottom: 15px;outline: 0px;text-wrap: wrap;line-height: 2em;"><span style="letter-spacing: 2px;"><span style="font-size: var(--articleFontsize);">20岁大学生梦瑶(化名)这两年被“怪病”困扰,</span><strong style="letter-spacing: 2px;font-size: var(--articleFontsize);outline: 0px;">发病时面部麻木、四肢无力,楼梯迈不上去,甚至笔也握不住。</strong></span></p><p style="margin-bottom: 15px;color: rgb(58, 58, 58);font-family: system-ui, -apple-system, BlinkMacSystemFont, Arial, sans-serif;letter-spacing: 0.544px;text-wrap: wrap;background-color: rgb(240, 248, 253);outline: 0px;line-height: 2em;"><span style="letter-spacing: 2px;"><span style="font-size: var(--articleFontsize);">记者近日获悉,她</span><span style="font-size: var(--articleFontsize);text-decoration-style: solid;text-decoration-color: rgb(58, 58, 58);">在江苏大学附属医院</span><span style="font-size: var(--articleFontsize);">被确诊</span><span style="font-size: var(--articleFontsize);text-decoration-style: solid;text-decoration-color: rgb(58, 58, 58);">“<strong>多发性硬化</strong>”</span><span style="font-size: var(--articleFontsize);">,</span>该病因多发于20-40岁的女性又被称为“美女病”。</span><strong style="letter-spacing: 2px;font-size: var(--articleFontsize);outline: 0px;"></strong><strong style="letter-spacing: 2px;font-size: var(--articleFontsize);outline: 0px;"></strong></p></section></section></section></section></section></section></section><section style="margin-right: 8px;margin-bottom: 24px;margin-left: 8px;outline: 0px;letter-spacing: 0.544px;background-color: rgb(255, 255, 255);line-height: 2em;font-family: system-ui, -apple-system, BlinkMacSystemFont, Arial, sans-serif;"><section style="margin-top: 20px;margin-bottom: 20px;outline: 0px;text-align: center;justify-content: center;display: flex;flex-flow: row;transform: translate3d(-1px, 0px, 0px);"><section style="padding-right: 20px;padding-left: 20px;outline: 0px;display: inline-block;width: 100%;vertical-align: top;border-style: solid;border-width: 3px;border-color: rgb(193, 223, 244);flex: 0 0 auto;height: auto;align-self: flex-start;"><section style="margin-top: -16px;margin-bottom: 5px;outline: 0px;"><section style="outline: 0px;display: inline-block;width: 28px;height: 28px;vertical-align: top;overflow: hidden;border-width: 3px;border-radius: 58px;border-style: solid;border-color: rgb(255, 255, 255);background-color: rgb(238, 145, 145);line-height: 0;"><section style="margin-top: 10px;outline: 0px;"><section style="outline: 0px;display: inline-block;width: 14px;height: 3px;vertical-align: top;overflow: hidden;background-color: rgb(255, 255, 255);"><svg viewbox="0 0 1 1" style="float: left;line-height: 0;width: 0px;vertical-align: top;"></svg></section></section><section style="outline: 0px;transform: rotateZ(90deg);"><section style="margin-top: -3px;outline: 0px;"><section style="outline: 0px;display: inline-block;width: 14px;height: 3px;vertical-align: top;overflow: hidden;background-color: rgb(255, 255, 255);"><svg viewbox="0 0 1 1" style="float: left;line-height: 0;width: 0px;vertical-align: top;"></svg></section></section></section></section></section><section style="margin-top: 12px;outline: 0px;"><section style="outline: 0px;text-align: justify;color: rgb(0, 110, 166);"><p style="outline: 0px;line-height: 2em;"><span style="outline: 0px;letter-spacing: 2px;"><strong style="outline: 0px;">什么是多发性硬化?</strong></span></p></section></section><section style="margin-top: 15px;margin-bottom: 20px;outline: 0px;"><section style="outline: 0px;text-align: justify;color: rgb(58, 58, 58);"><p style="outline: 0px;line-height: 2em;"><span style="outline: 0px;letter-spacing: 2px;color: rgb(0, 0, 0);">据介绍,“多发性硬化”是一种免疫介导的中枢神经系统慢性炎性脱髓鞘疾病,<span style="outline: 0px;background-color: rgb(255, 237, 135);"><strong style="outline: 0px;">“多发”指的是“时间多发”和“空间多发”,</strong></span>绝大部分患者在不同时间反复发作,病灶可出现在中枢神经系统的不同部位,引起不同症状,随着病情发展,严重者可致残。<span style="outline: 0px;background-color: rgb(255, 237, 135);"><strong style="outline: 0px;">该病在我国的发病率为每年0.235/10万,多见于20-40岁的女性,2018年被纳入《第一批罕见病目录》。</strong></span></span></p></section></section></section></section></section><section style="margin: 30px 8px 10px; outline: 0px; letter-spacing: 0.544px; background-color: rgb(255, 255, 255); line-height: 2em; font-family: system-ui, -apple-system, BlinkMacSystemFont, Arial, sans-serif; text-align: center;"><section style="outline: 0px;vertical-align: middle;display: inline-block;line-height: 0;width: 100%;height: auto;"></section></section><section style="margin-bottom: 35px;outline: 0px;font-size: 14px;letter-spacing: 0.544px;background-color: rgb(255, 255, 255);font-family: system-ui, -apple-system, BlinkMacSystemFont, Arial, sans-serif;"><section style="outline: 0px;color: rgb(168, 168, 168);"><section style="margin-right: 8px;margin-left: 8px;outline: 0px;line-height: 2em;"><p style="line-height:1em;"><span style="outline: 0px;letter-spacing: 1px;">#哪些人容易得美女病#的话题冲上热搜,引发网友关注</span></p></section></section></section><section style="margin-right: 8px;margin-bottom: 24px;margin-left: 8px;outline: 0px;letter-spacing: 0.544px;background-color: rgb(255, 255, 255);line-height: 2em;font-family: system-ui, -apple-system, BlinkMacSystemFont, Arial, sans-serif;"><section style="margin-top: 20px;margin-bottom: 30px;outline: 0px;text-align: center;justify-content: center;display: flex;flex-flow: row;transform: translate3d(-1px, 0px, 0px);"><section style="padding-right: 20px;padding-left: 20px;outline: 0px;display: inline-block;width: 100%;vertical-align: top;border-style: solid;border-width: 3px;border-color: rgb(193, 223, 244);flex: 0 0 auto;height: auto;align-self: flex-start;"><section style="margin-top: -16px;margin-bottom: 5px;outline: 0px;"><section style="outline: 0px;display: inline-block;width: 28px;height: 28px;vertical-align: top;overflow: hidden;border-width: 3px;border-radius: 58px;border-style: solid;border-color: rgb(255, 255, 255);background-color: rgb(238, 145, 145);line-height: 0;"><section style="margin-top: 10px;outline: 0px;"><section style="outline: 0px;display: inline-block;width: 14px;height: 3px;vertical-align: top;overflow: hidden;background-color: rgb(255, 255, 255);"><svg viewbox="0 0 1 1" style="float: left;line-height: 0;width: 0px;vertical-align: top;"></svg></section></section><section style="outline: 0px;transform: rotateZ(90deg);"><section style="margin-top: -3px;outline: 0px;"><section style="outline: 0px;display: inline-block;width: 14px;height: 3px;vertical-align: top;overflow: hidden;background-color: rgb(255, 255, 255);"><svg viewbox="0 0 1 1" style="float: left;line-height: 0;width: 0px;vertical-align: top;"></svg></section></section></section></section></section><section style="margin-top: 12px;outline: 0px;"><section style="outline: 0px;text-align: justify;color: rgb(0, 110, 166);"><p style="outline: 0px;line-height: 2em;"><span style="outline: 0px;letter-spacing: 2px;"><strong style="outline: 0px;">多发性硬化有什么症状和表现?</strong></span></p></section></section><section style="margin-top: 15px;outline: 0px;"><section style="outline: 0px;text-align: justify;"><p style="margin-bottom: 15px;outline: 0px;text-wrap: wrap;line-height: 2em;"><span style="outline: 0px;letter-spacing: 2px;"><strong style="outline: 0px;">眼睛:</strong>视力下降、复视(重影)、看东西模糊、眼运动异常(凝视、震颤)。</span></p><p style="margin-bottom: 15px;outline: 0px;text-wrap: wrap;line-height: 2em;"><span style="outline: 0px;letter-spacing: 2px;"><strong style="outline: 0px;">感觉障碍:</strong>肢体或躯干的麻木、针刺感、发冷、肿胀,温觉和痛觉的减退,下**和腹部的疼痛,颈部的瘙痒感。</span></p><p style="margin-bottom: 15px;outline: 0px;text-wrap: wrap;line-height: 2em;"><span style="outline: 0px;letter-spacing: 2px;"><strong style="outline: 0px;">运动障碍:</strong>下肢无力、痉挛、肌肉萎缩,步态不协调、平衡感下降,肢体难以执行动作指令、口齿不清、异常疲劳。</span></p><p style="margin-bottom: 15px;outline: 0px;text-wrap: wrap;line-height: 2em;"><span style="outline: 0px;letter-spacing: 2px;"><strong style="outline: 0px;">膀胱或直肠功能障碍:</strong>小便症状含尿频、尿急、尿失禁、尿潴留、尿不尽、尿液中断。大便症状含便秘、排泄不良和大便失禁。</span></p><p style="margin-bottom: 15px;outline: 0px;text-wrap: wrap;line-height: 2em;"><span style="outline: 0px;letter-spacing: 2px;"><strong style="outline: 0px;">认知和情感障碍:</strong>注意力不集中、记忆力下降、判断力下降、抑郁、焦虑等。</span></p><p style="outline: 0px;line-height: 2em;"><span style="outline: 0px;letter-spacing: 2px;"><strong style="outline: 0px;">其他:</strong>癫痫、性功能障碍、睡眠障碍、眩晕等。</span></p><p style="outline: 0px;line-height: 2em;"><span style="outline: 0px;letter-spacing: 2px;"><br/></span></p></section></section></section></section></section><section data-role="paragraph"><section style="margin: 10px 8px 4px;outline: 0px;font-family: system-ui, -apple-system, BlinkMacSystemFont, Helvetica Neue, PingFang SC, Hiragino Sans GB, Microsoft YaHei UI, Microsoft YaHei, Arial, sans-serif;letter-spacing: 0.544px;text-wrap: wrap;background-color: rgb(255, 255, 255);text-align: center;line-height: 2em;"><section style="outline: 0px;vertical-align: middle;display: inline-block;line-height: 0;width: 33.0469px;height: auto;"></section></section><section powered-by="xiumi.us" style="margin-bottom: 30px;outline: 0px;font-family: system-ui, -apple-system, BlinkMacSystemFont, Helvetica Neue, PingFang SC, Hiragino Sans GB, Microsoft YaHei UI, Microsoft YaHei, Arial, sans-serif;letter-spacing: 0.544px;text-wrap: wrap;background-color: rgb(255, 255, 255);text-align: center;"><section style="outline: 0px;font-size: 18px;"><section style="margin-right: 8px;margin-left: 8px;outline: 0px;line-height: 2em;"><span style="outline: 0px;font-size: 17px;letter-spacing: 2px;"><strong style="outline: 0px;">总结一下</strong></span></section></section></section><section style="margin-right: 8px;margin-left: 8px;outline: 0px;font-family: system-ui, -apple-system, BlinkMacSystemFont, Helvetica Neue, PingFang SC, Hiragino Sans GB, Microsoft YaHei UI, Microsoft YaHei, Arial, sans-serif;letter-spacing: 0.544px;text-wrap: wrap;background-color: rgb(255, 255, 255);line-height: 2em;"><section powered-by="xiumi.us" style="outline: 0px;display: flex;flex-flow: row;text-align: left;justify-content: flex-start;"><section style="outline: 0px;display: inline-block;vertical-align: top;width: auto;align-self: flex-start;flex: 0 0 0%;height: auto;"><section powered-by="xiumi.us" style="margin-top: 10px;outline: 0px;text-align: center;transform: translate3d(4px, 0px, 0px);"><section style="outline: 0px;display: inline-block;vertical-align: top;overflow: hidden;height: 7px;width: 7px;border-width: 0px;border-radius: 2px;border-style: none;border-color: rgb(62, 62, 62);background-color: rgb(164, 197, 227);"><svg viewbox="0 0 1 1" style="float:left;line-height:0;width:0;vertical-align:top;"></svg></section></section></section><section style="padding-right: 20px;padding-bottom: 20px;padding-left: 20px;outline: 0px;display: inline-block;width: auto;vertical-align: top;border-left: 1px solid rgb(164, 197, 227);border-bottom-left-radius: 0px;flex: 100 100 0%;align-self: flex-start;height: auto;"><section powered-by="xiumi.us" style="outline: 0px;color: rgb(58, 58, 58);text-align: justify;"><p style="outline: 0px;"><span style="outline: 0px;font-size: 17px;letter-spacing: 2px;font-family: Helvetica Neue, Helvetica, Hiragino Sans GB, Microsoft YaHei, Arial, sans-serif;"><span style="outline: 0px;color: rgb(0, 110, 166);"><strong style="outline: 0px;">多发性硬化大多青壮年起病,女性多于男性,</strong></span>许多病人还面临学习、工作等多方面的问题。</span></p></section></section></section><section powered-by="xiumi.us" style="outline: 0px;display: flex;flex-flow: row;text-align: left;justify-content: flex-start;"><section style="outline: 0px;display: inline-block;vertical-align: top;width: auto;align-self: flex-start;flex: 0 0 0%;height: auto;"><section powered-by="xiumi.us" style="margin-top: 10px;outline: 0px;text-align: center;transform: translate3d(4px, 0px, 0px);"><section style="outline: 0px;display: inline-block;width: 7px;height: 7px;vertical-align: top;overflow: hidden;border-width: 0px;border-radius: 2px;border-style: none;border-color: rgb(62, 62, 62);background-color: rgb(164, 197, 227);"><svg viewbox="0 0 1 1" style="float:left;line-height:0;width:0;vertical-align:top;"></svg></section></section></section><section style="padding-right: 20px;padding-bottom: 20px;padding-left: 20px;outline: 0px;display: inline-block;vertical-align: top;width: auto;border-left: 1px solid rgb(164, 197, 227);border-bottom-left-radius: 0px;flex: 100 100 0%;align-self: flex-start;height: auto;"><section powered-by="xiumi.us" style="outline: 0px;color: rgb(58, 58, 58);text-align: justify;"><p style="outline: 0px;"><span style="outline: 0px;font-size: 17px;letter-spacing: 2px;font-family: Helvetica Neue, Helvetica, Hiragino Sans GB, Microsoft YaHei, Arial, sans-serif;">多发性硬化容易复发,若不正规治疗,病人会出现越来越多的神经功能缺损,可能会造成严重的残疾并影响生活质量。</span></p></section></section></section><section powered-by="xiumi.us" style="outline: 0px;display: flex;flex-flow: row;text-align: left;justify-content: flex-start;"><section style="outline: 0px;display: inline-block;vertical-align: top;width: auto;align-self: flex-start;flex: 0 0 0%;height: auto;"><section powered-by="xiumi.us" style="margin-top: 10px;outline: 0px;text-align: center;transform: translate3d(4px, 0px, 0px);"><section style="outline: 0px;display: inline-block;width: 7px;height: 7px;vertical-align: top;overflow: hidden;border-width: 0px;border-radius: 2px;border-style: none;border-color: rgb(62, 62, 62);background-color: rgb(164, 197, 227);"><svg viewbox="0 0 1 1" style="float:left;line-height:0;width:0;vertical-align:top;"></svg></section></section></section><section style="margin-bottom: 0px;"><section style="padding-right: 20px;padding-bottom: 20px;padding-left: 20px;outline: 0px;display: inline-block;vertical-align: top;width: auto;border-left: 1px solid rgb(164, 197, 227);border-bottom-left-radius: 0px;flex: 100 100 0%;align-self: flex-start;height: auto;"><section powered-by="xiumi.us" style="outline: 0px;color: rgb(58, 58, 58);text-align: justify;"><p style="outline: 0px;"><span style="outline: 0px;font-size: 17px;letter-spacing: 2px;font-family: Helvetica Neue, Helvetica, Hiragino Sans GB, Microsoft YaHei, Arial, sans-serif;">我国多发性硬化病人及时就诊率偏低,大多数病人认知不足也不够重视。</span></p></section></section></section></section></section><section style="margin: 20px 8px 4px;outline: 0px;font-family: system-ui, -apple-system, BlinkMacSystemFont, Helvetica Neue, PingFang SC, Hiragino Sans GB, Microsoft YaHei UI, Microsoft YaHei, Arial, sans-serif;letter-spacing: 0.544px;text-wrap: wrap;background-color: rgb(255, 255, 255);text-align: center;line-height: 2em;"><section style="outline: 0px;vertical-align: middle;display: inline-block;line-height: 0;width: 33.0469px;height: auto;"></section></section><section powered-by="xiumi.us" style="margin-bottom: 30px;outline: 0px;font-family: system-ui, -apple-system, BlinkMacSystemFont, Helvetica Neue, PingFang SC, Hiragino Sans GB, Microsoft YaHei UI, Microsoft YaHei, Arial, sans-serif;letter-spacing: 0.544px;text-wrap: wrap;background-color: rgb(255, 255, 255);text-align: center;"><section style="outline: 0px;font-size: 18px;"><section style="margin-right: 8px;margin-left: 8px;outline: 0px;line-height: 2em;"><span style="outline: 0px;font-size: 17px;letter-spacing: 2px;"><strong style="outline: 0px;">我们能做些什么</strong></span></section></section></section><section style="margin-right: 8px;margin-left: 8px;outline: 0px;font-family: system-ui, -apple-system, BlinkMacSystemFont, Helvetica Neue, PingFang SC, Hiragino Sans GB, Microsoft YaHei UI, Microsoft YaHei, Arial, sans-serif;letter-spacing: 0.544px;text-wrap: wrap;background-color: rgb(255, 255, 255);line-height: 2em;"><section powered-by="xiumi.us" style="outline: 0px;display: flex;flex-flow: row;text-align: left;justify-content: flex-start;"><section style="outline: 0px;display: inline-block;vertical-align: top;width: auto;align-self: flex-start;flex: 0 0 0%;height: auto;"><section powered-by="xiumi.us" style="margin-top: 10px;outline: 0px;text-align: center;transform: translate3d(4px, 0px, 0px);"><section style="outline: 0px;display: inline-block;width: 7px;height: 7px;vertical-align: top;overflow: hidden;border-width: 0px;border-radius: 2px;border-style: none;border-color: rgb(62, 62, 62);background-color: rgb(164, 197, 227);"><svg viewbox="0 0 1 1" style="float:left;line-height:0;width:0;vertical-align:top;"></svg></section></section></section><section style="padding-right: 20px;padding-bottom: 20px;padding-left: 20px;outline: 0px;display: inline-block;vertical-align: top;width: auto;border-left: 1px solid rgb(164, 197, 227);border-bottom-left-radius: 0px;flex: 100 100 0%;align-self: flex-start;height: auto;"><section powered-by="xiumi.us" style="outline: 0px;color: rgb(58, 58, 58);text-align: justify;"><p style="outline: 0px;"><span style="outline: 0px;letter-spacing: 2px;font-family: Helvetica Neue, Helvetica, Hiragino Sans GB, Microsoft YaHei, Arial, sans-serif;"><strong style="outline: 0px;"><span style="outline: 0px;color: rgb(0, 110, 166);">发病率低、病种多、病情重、诊断难,是罕见病鲜明的特征,</span></strong>这也导致很多罕见病患者被误诊、漏诊,不能得到及时有效的治疗。</span></p></section></section></section><section powered-by="xiumi.us" style="outline: 0px;display: flex;flex-flow: row;text-align: left;justify-content: flex-start;"><section style="outline: 0px;display: inline-block;vertical-align: top;width: auto;align-self: flex-start;flex: 0 0 0%;height: auto;"><section powered-by="xiumi.us" style="margin-top: 10px;outline: 0px;text-align: center;transform: translate3d(4px, 0px, 0px);"><section style="outline: 0px;display: inline-block;width: 7px;height: 7px;vertical-align: top;overflow: hidden;border-width: 0px;border-radius: 2px;border-style: none;border-color: rgb(62, 62, 62);background-color: rgb(164, 197, 227);"><svg viewbox="0 0 1 1" style="float:left;line-height:0;width:0;vertical-align:top;"></svg></section></section></section><section style="margin-bottom: 0px;"><section style="padding-right: 20px;padding-bottom: 20px;padding-left: 20px;outline: 0px;display: inline-block;vertical-align: top;width: auto;border-left: 1px solid rgb(164, 197, 227);border-bottom-left-radius: 0px;flex: 100 100 0%;align-self: flex-start;height: auto;"><section powered-by="xiumi.us" style="outline: 0px;color: rgb(58, 58, 58);text-align: justify;"><p style="outline: 0px;"><span style="outline: 0px;letter-spacing: 2px;font-family: Helvetica Neue, Helvetica, Hiragino Sans GB, Microsoft YaHei, Arial, sans-serif;">比罕见病更罕见的是罕见病医生,因为病例少,病情复杂,培养过程长等因素,是目前存在的普遍现象。但随着国家对罕见病投入的加大,很多专学科都在积极提升罕见病的诊治能力。</span></p></section></section></section></section></section></section></section><p style="margin: 8px 8px 0px;outline: 0px;color: rgb(235, 0, 0);font-family: system-ui, -apple-system, BlinkMacSystemFont, Helvetica Neue, PingFang SC, Hiragino Sans GB, Microsoft YaHei UI, Microsoft YaHei, Arial, sans-serif;letter-spacing: 0.544px;text-align: center;text-wrap: wrap;background-color: rgb(255, 255, 255);line-height: normal;"><span style="color: rgb(0, 0, 0);font-size: var(--articleFontsize);letter-spacing: 2px;"></span></p><p></p><section style="margin: 8px 8px 0px;outline: 0px;color: rgb(235, 0, 0);font-family: system-ui, -apple-system, BlinkMacSystemFont, Helvetica Neue, PingFang SC, Hiragino Sans GB, Microsoft YaHei UI, Microsoft YaHei, Arial, sans-serif;letter-spacing: 0.544px;text-align: center;text-wrap: wrap;background-color: rgb(255, 255, 255);line-height: 2em;"><span style="color: rgb(0, 0, 0);font-size: var(--articleFontsize);letter-spacing: 2px;">作为公众</span><br/></section><section style="margin-right: 8px;margin-bottom: 0px;margin-left: 8px;outline: 0px;color: rgb(235, 0, 0);font-family: system-ui, -apple-system, BlinkMacSystemFont, Helvetica Neue, PingFang SC, Hiragino Sans GB, Microsoft YaHei UI, Microsoft YaHei, Arial, sans-serif;letter-spacing: 0.544px;text-align: center;text-wrap: wrap;background-color: rgb(255, 255, 255);line-height: 2em;"><span style="outline: 0px;letter-spacing: 2px;color: rgb(0, 0, 0);">我们应该提高对疾病的认识</span></section><section style="margin-right: 8px;margin-bottom: 0px;margin-left: 8px;outline: 0px;color: rgb(235, 0, 0);font-family: system-ui, -apple-system, BlinkMacSystemFont, Helvetica Neue, PingFang SC, Hiragino Sans GB, Microsoft YaHei UI, Microsoft YaHei, Arial, sans-serif;letter-spacing: 0.544px;text-align: center;text-wrap: wrap;background-color: rgb(255, 255, 255);line-height: 2em;"><span style="outline: 0px;letter-spacing: 2px;color: rgb(0, 0, 0);">当出现相关的症状和表现时</span></section><section style="margin-right: 8px;margin-bottom: 0px;margin-left: 8px;outline: 0px;color: rgb(235, 0, 0);font-family: system-ui, -apple-system, BlinkMacSystemFont, Helvetica Neue, PingFang SC, Hiragino Sans GB, Microsoft YaHei UI, Microsoft YaHei, Arial, sans-serif;letter-spacing: 0.544px;text-align: center;text-wrap: wrap;background-color: rgb(255, 255, 255);line-height: 2em;"><span style="outline: 0px;letter-spacing: 2px;color: rgb(0, 0, 0);">要引起重视</span></section><section style="margin-right: 8px;margin-bottom: 0px;margin-left: 8px;outline: 0px;color: rgb(235, 0, 0);font-family: system-ui, -apple-system, BlinkMacSystemFont, Helvetica Neue, PingFang SC, Hiragino Sans GB, Microsoft YaHei UI, Microsoft YaHei, Arial, sans-serif;letter-spacing: 0.544px;text-align: center;text-wrap: wrap;background-color: rgb(255, 255, 255);line-height: 2em;"><span style="outline: 0px;letter-spacing: 2px;color: rgb(0, 0, 0);">尽早到医院就诊</span></section><section style="margin-right: 8px;margin-bottom: 0px;margin-left: 8px;outline: 0px;color: rgb(235, 0, 0);font-family: system-ui, -apple-system, BlinkMacSystemFont, Helvetica Neue, PingFang SC, Hiragino Sans GB, Microsoft YaHei UI, Microsoft YaHei, Arial, sans-serif;letter-spacing: 0.544px;text-align: center;text-wrap: wrap;background-color: rgb(255, 255, 255);line-height: 2em;"><span style="outline: 0px;letter-spacing: 2px;color: rgb(0, 0, 0);">积极配合检查,进行规范治疗</span><span style="outline: 0px;color: rgb(0, 122, 170);letter-spacing: 2px;"><strong style="outline: 0px;"></strong><strong style="outline: 0px;"></strong></span></section><section style="margin-right: 8px;margin-bottom: 0px;margin-left: 8px;outline: 0px;color: rgb(235, 0, 0);font-family: system-ui, -apple-system, BlinkMacSystemFont, Helvetica Neue, PingFang SC, Hiragino Sans GB, Microsoft YaHei UI, Microsoft YaHei, Arial, sans-serif;letter-spacing: 0.544px;text-align: center;text-wrap: wrap;background-color: rgb(255, 255, 255);line-height: 2em;"><span style="outline: 0px;letter-spacing: 0.5px;"><strong style="outline: 0px;"></strong></span></section><section style="margin-right: 8px;margin-bottom: 0px;margin-left: 8px;outline: 0px;color: rgb(235, 0, 0);font-family: system-ui, -apple-system, BlinkMacSystemFont, Helvetica Neue, PingFang SC, Hiragino Sans GB, Microsoft YaHei UI, Microsoft YaHei, Arial, sans-serif;letter-spacing: 0.544px;text-align: center;text-wrap: wrap;background-color: rgb(255, 255, 255);line-height: 2em;"><span style="outline: 0px;letter-spacing: 0.5px;"><strong style="outline: 0px;"><br/></strong></span></section><p></p><p style="margin-right: 8px;margin-bottom: 0px;margin-left: 8px;text-wrap: wrap;outline: 0px;color: rgb(235, 0, 0);font-family: system-ui, -apple-system, BlinkMacSystemFont, Helvetica Neue, PingFang SC, Hiragino Sans GB, Microsoft YaHei UI, Microsoft YaHei, Arial, sans-serif;letter-spacing: 0.544px;text-align: center;background-color: rgb(255, 255, 255);line-height: 2em;"><span style="outline: 0px;color: rgb(0, 122, 170);letter-spacing: 2px;"><strong style="outline: 0px;">今天是</strong></span></p><p style="margin-right: 8px;margin-bottom: 0px;margin-left: 8px;text-wrap: wrap;outline: 0px;color: rgb(235, 0, 0);font-family: system-ui, -apple-system, BlinkMacSystemFont, Helvetica Neue, PingFang SC, Hiragino Sans GB, Microsoft YaHei UI, Microsoft YaHei, Arial, sans-serif;letter-spacing: 0.544px;text-align: center;background-color: rgb(255, 255, 255);line-height: 2em;"><span style="outline: 0px;color: rgb(0, 122, 170);letter-spacing: 2px;"><strong style="outline: 0px;">第十七届国际罕见病日</strong></span></p><p style="margin-right: 8px;margin-bottom: 0px;margin-left: 8px;text-wrap: wrap;outline: 0px;color: rgb(235, 0, 0);font-family: system-ui, -apple-system, BlinkMacSystemFont, Helvetica Neue, PingFang SC, Hiragino Sans GB, Microsoft YaHei UI, Microsoft YaHei, Arial, sans-serif;letter-spacing: 0.544px;text-align: center;background-color: rgb(255, 255, 255);line-height: 2em;"><span style="outline: 0px;color: rgb(0, 122, 170);letter-spacing: 2px;"><strong style="outline: 0px;">关注罕见病</strong></span></p><p style="margin-right: 8px;margin-bottom: 0px;margin-left: 8px;text-wrap: wrap;outline: 0px;color: rgb(235, 0, 0);font-family: system-ui, -apple-system, BlinkMacSystemFont, Helvetica Neue, PingFang SC, Hiragino Sans GB, Microsoft YaHei UI, Microsoft YaHei, Arial, sans-serif;letter-spacing: 0.544px;text-align: center;background-color: rgb(255, 255, 255);line-height: 2em;"><span style="outline: 0px;color: rgb(0, 122, 170);letter-spacing: 2px;"><strong style="outline: 0px;">就是关注我们的未来</strong></span></p><h2 data-darkmode-bgcolor-16475014263612="rgb(25, 25, 25)" data-darkmode-original-bgcolor-16475014263612="#fff|rgb(255, 255, 255)|rgb(255, 255, 255)" data-darkmode-color-16475014263612="rgb(163, 163, 163)" data-darkmode-original-color-16475014263612="#fff|rgb(0, 0, 0)" style="margin-bottom: 0em;outline: 0px;letter-spacing: 0.544px;text-wrap: wrap;background-color: rgb(255, 255, 255);color: rgb(5, 0, 0);text-align: right;widows: 1;visibility: visible;font-family: system-ui, -apple-system, BlinkMacSystemFont, Arial, sans-serif;"><section style="outline: 0px;visibility: visible;"><section data-role="paragraph" style="outline: 0px;letter-spacing: 0.544px;visibility: visible;"><section data-role="paragraph" style="outline: 0px;letter-spacing: 0.578px;visibility: visible;"><section data-role="paragraph" style="outline: 0px;font-size: 13px;letter-spacing: 0.544px;visibility: visible;font-family: mp-quote, -apple-system-font, BlinkMacSystemFont, Arial, sans-serif;"><section style="outline: 0px;line-height: 2;visibility: visible;"><section style="outline: 0px;color: rgb(34, 34, 34);visibility: visible;line-height: normal;"><section data-role="paragraph" style="outline: 0px;letter-spacing: 0.544px;visibility: visible;font-family: -apple-system, BlinkMacSystemFont, Arial, sans-serif;"><section data-role="paragraph" style="outline: 0px;visibility: visible;"><strong style="outline: 0px;color: rgb(217, 33, 66);font-size: 20px;letter-spacing: 2px;caret-color: rgb(34, 34, 34);"><strong style="outline: 0px;"></strong></strong><strong style="outline: 0px;color: rgb(217, 33, 66);font-size: 20px;letter-spacing: 2px;caret-color: rgb(34, 34, 34);"></strong></section></section></section></section></section></section></section></section></h2><p style="display: none;"><mp-style-type data-value="3"></mp-style-type></p><p style="color:#999;font-size:.8em;margin-top:1em">转载声明:本文转载自马鞍山日报&nbsp;</p><p><br/></p><link rel="stylesheet" href="// id="wcn_editor_css"/>

人间自动化 发表于 2024-3-1 14:05:07

哇,这个消息确实让人震惊!多发性硬化这种罕见病对患者来说一定是巨大的挑战。20岁的大学生梦瑶要面对这样的困扰,真的让人心疼。不过,我相信她一定会坚强地面对治疗和康复的过程。希望她能早日康复,重新踏上阳光明媚的大学生活!💪
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